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Angels Smiling
Parents Touched
by Angelman Syndrome
by Angelman Syndrome
By Laura Paul
Dr. Wagstaff helped conduct a study using very low doses of melatonin to treat the sleep disorder in children with Angelman syndrome. He says two-thirds of the children with Angelman syndrome had a very significant improvement in their sleep and are now sleeping eight hours a night with a low dose of melatonin just before they go to sleep.
"That's been one of our biggest issues, trying to understand how he communicates," Davis says. "We just kind of get the idea when he is hungry; you can tell he whines in a certain way."
Tyler likes to touch people and hug them to communicate. "We are really lucky because he is socially engaging," Davis says. "He knows how to make sounds to get people's attention. He's got this enormous smile. Truly he really attracts people. If we are in a restaurant, he is reaching out for people walking by, smiling."
Frank McCullough III of Charleston, W.Va., past president of the Angelman Syndrome Foundation, says his daughter, Kate, 16, does not talk but can walk. Her seizures are under control with mild doses of medication.
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