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Shelly's Diary Entries

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February 16, 2003

2/16/04

A Sweet boy
Sean amazes me with his tenderness of others. He is so intune with how others are doing or what they need.
I was making a casserole for a family who just lost their grandpa. When I dropped it off, Sean recognized many of the women from church. One in particular is a single woman who has never married. Sean asked why she wasn't married and be old.(She is older, but not by much) I said I didn't know. He told her we were going to go home and make plum pie. She said that sounded yummy and asked him to tell her about it at church the next day. He said he would. Now as we walked away, he said we needed to make a pie just for her. So I said we could. We went and bought the pie filling and pie crust(I don't do crusts!) We couldn't find plum, but decided on blue berry. We went home and put together the pies. On this friend, we cut out the top crust with heart cutters to make a beautiful design. After it was done cooking, we took it over with a card we made. She was soo shocked and just tickled that someone remembered her on Valentines! It really surprised her when I told her it was Sean's idea and he helped put it together. She told Sean that this was the best Valentine's day she has ever had since a child. I could tell Sean was very proud of himself. I am so dare proud of my boy! On Sunday she gave me a card to give to him. He as home coughing away. He was so proud of the card and what he had done. He said he felt good about helping someone feel happy. I hope he never forgets that feeling!

Health wise, Sean is doing fair. Not worse, but not better either. The Dr we saw on Friday felt Sean really needed fight this on his own before we intervened with antitbiotics or steroids. He had spoken to our Ped and they both agreed and if we needed to be seen again, call Tuesday. Sean will not be able to go to school this week since the coughing is just too much. He can't do much without hacking. Of course he sounds like he is on his death bed, but with people with the TEF/EA, it will always sound like they smoke a pack a day even when they are not sick! We get some pretty strange looks or comments. I try hard to just down play it. BUT there was one lady who just was in my face! I finally had had enough and I turned to face her and said she didn't have a clue to what was wrong with my son. I told her he had severe lung issues and went on to list them with the medical terms. I then told her that if she felt she could do any better, then by means take him and care for him! I also told her she would need tons of money since he racks up medical bills into the millions each year. She looked at me and apologized for upsetting me and that I had to have a child such as issues. She wished me the best and was on her way. My husband was standing there looking at me and asked if I was okay. I was, but for people to think they need to inform you what you are doing wrong, I just don't have patience with them. I try since they don't know nor understand, but it is hard. I need help and understanding, not a lecture! But on the other hand, so do they.


I need to be on my way. Everyone is sick and are all needing mommy! The joys of being a parent! I love every single minute of it!

Shelly and Sean



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